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Today I had a major setback as both my legs and trunk stopped working, just like that'. Also my breathing muscles are almost completely paralyzed, I have a catheter and briefs as I can't get out of bed. I've decided enough is enough. Early next week I will be checking into the hospice house...

Actually I disagree that it's better to know. That's true for a disease with even a 1% chance of treatment. For this diseases, ignorance is bliss.

The best I've heard of riluzole is that it can extend life by 3 months, IF it's started at disease onset. Now how many years go by before the avarage person is diagnosed with ALS? I repeat, if this kind of progress was being made in cancer research there would be riots in the streets.

Our, flush

Ur hospice nurse said to insert syringe, pull up on it to see if there is residual, then flish with water. It's worked every time

Honestly one ineffective drug in 20 years? Imagine how the cancer lobby would be screaming if that were the case with them

Both neurologists who run the Houston ALS clinic said not to waste your money on riluzole

Riluzole is a bad joke

Very appropriate poem BK. I have often called this disease hell on earth, I have no desire to see what's cooked up in the real thing

Can't control my hand very well sorry for the misspells