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  1. J

    Have concerns. Please advise

    *NOT my intent to make you angry
  2. J

    Have concerns. Please advise

    Again, I am really sorry for causing problems on here. I feel like I am making a lot of you angry when that is my intent. As far as wanting attention, I don't. I am just vey scared. Sorry to bother you all and thank you for the valueable input. I will leave the forum.
  3. J

    Have concerns. Please advise

    Re: Misdiagnosis I really appreciate the input. I am not trying to cause anger or frustration. I am simply very curious. I didn't know anything about neurology except it was the study of the nervous system, when this all started happening. All of this is overwhelming and new to me.
  4. J

    Have concerns. Please advise

    Re: Misdiagnosis I don't intend to create panic. I could be very wrong. Just trying to look for answers
  5. J

    Have concerns. Please advise

    Misdiagnosis How common is it for others to be diagnosed with another neuro problem such as BFS or BCFS when it is really ALS? I am getting frustrated looking into certain diseases because something always pops up where someone was misdiagnosed. How awful! Does that mean there is no good way...
  6. J

    Have concerns. Please advise

    I am going to see an ALS specialist in a couple weeks. I guess I am just looking for some reassurance.
  7. J

    Have concerns. Please advise

    I forgot to mention, there is some charley horseness going on in my legs but only when I stretch them in certain ways. Thank you for responding so fast. I hope to hear from more of you.
  8. J

    Have concerns. Please advise

    I have not been officially diagnosed with BFS as of yet but in my neuro notes, he chalks my symptoms up to anxiety. In early January I had been dealing with a globus sensation in my throat for about a month when I began twiching all over my body after exercising one day in late February. I saw...
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