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  1. S

    i give up

    I have a hospital in my and I have an room commode I have nice electric wheelchair I have people who feed me, bathe me and a volunteer who takes me for walks my daughter bought a van to take to to advents and she woks across the hall from mine and to do becccn she comes to my defense. I have...
  2. S

    woman saves hersef from not being ventilates

    Health News - ALS Patient Receives Device to Aid Breathing Without Ventilator
  3. S

    All day in a wheelchair

    My bottom gets plenty of one on one contact. I looked eBay and saw a gel cushion and then I saw with holes in it. If you have this problem - which type of wheelchair do you find most helpful? Leaning back and transferring pressure to my back is no help at all. Plus, I wear a diaper """"...
  4. S

    I just can't stay awake

    I sleep all night get dressed and in wheelchair and take 5-6 hour long nap in the afternoon. I wake with any noise but tv just dosen't intrest me and I'd fall alseep watching it anyway Sandy
  5. S

    ALS and colds

    I have a cold with nasal congestion and coughing. When is appropriate to call for help?
  6. S

    Urinary Catheterization or diapers

    When my husband died I got to use all his leftover diapers. My caregiver is leaning toward Catheterization. What are your opinions about this? Sandy
  7. S

    Always feel sick

    Do PALS always feel sick? Sometimes I feel stomach sick which burping doesn't fix. Sometimes it's affecting my head, and often both. I've tried cutting out different meds with no effect, but I suppose it's my drool med. Is this an issue I should mention to my ALS doctor? Sandy
  8. S

    toes

    The other night when switching from wheelchair to walker because the wheelchair dosen't fit in the bathroom I noticed the toes on my sciatic side were all curled under, with toenails pointing toward the floor. I realize this is an MS thing, but do have two diseases or is something PALS get? I...
  9. S

    Head foginess

    I often feel like my head is too big for my body. I call it foginess, may be the start of dementia. Somes I hear a springy boom boom boom that is somewhat muted, like a far off echo. I thought it might because of medication. Sandy
  10. S

    Throat closing

    It's always a challenge to find the perfect angle of iclanation either in bed or wheelchair where the drooling stops and my throat opens up. Does any other PAL have their throat closing preventing swallowing?
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