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Charlene, Prayers going out! Lynne

Hi all, I use a Respironics Wisp mask. My husband cleans mine every few days. I find that after a month or so it starts to irritate my nose. I order a new one and I'm "good to go" Here's a link: Respironics WISP Nasal Mask and Headgear I order from the company I got my c-pap from. It has...

Janelle, I needed to read your post this evening! As you said and I try my best to do. "One Day at a Time" that's all I can do. My breathing is pretty bad now and I use the power wheelchair all the time. I can shuffle but it get's me too out of breath. I use bi-pap as much as I can. It seems...

Audrey (Jeanau), Prayers for you and your family. Lynne

Hello all, This is an interesting thread. In some way I am grateful for the emotional, spiritual and mental growth I have experienced since my diagnosis. That is not to say if God asked me if I wanted to be healed I would say, "no". This is where I find myself (with ALS). As I thought about...

Tripete and Glenn, Thanks Tripete for your testimony, I certainly can relate! Praise the Lord for the life I've been given and the black robe I was allowed to take off and the beautiful white, clean, sparkling robe I am allowed to wear because of HIS righteousness! I think we all process this...

Hello everyone, I was diagnosed 1 year ago on June 17th, 2014. Soon after I found that James 1:2-4 was my favorite scripture: Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness...

Well Max, I violated rule #6. I was trying to throw something away in the waste bin, had the door open, rammed my right food into the door jamb. Then I panicked and pushed the joystick on the pwc in the wrong direction further adding to my dilemma and pinning my foot to the door jamb. Foot...

Hello all, I haven't been around in a while. I hope you are all ok - well - as ok as you can be. I was diagnosed 1 year ago June 17th. Seems like a long time ago although only a year. This has been a LONG year for a lot of reasons. Mostly good. I have grown so much emotionally and...

Hello all, I haven't been on here for ages but I wanted to weigh in on the topic of Hospice. I have quite a different view of Hospice. At my last lung doctor visit back in December - he told me I was at 50% lung capacity (I'm sure it has gotten much worse) and ordered Bi-pap to use at night. At...