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  1. T

    Hello old friends

    Thank you for response , would an emg pick up abnormalities that early ? The calf I and neurologist noticed lack of muscle compared to other was tested in emg My diaphragm was not tested From what I heard is that respiratory insufficiency in ALS signs show use of accessory muscles , in my...
  2. T

    Hello old friends

    I actually don’t feel short of breath weirdly , feels like my muscles not complying or message not being sent , I dunno if anxiety can do that ? My pfts I did were lower than normal when I did them after begging the neuro , but she tested for pompe disease which was negative and moved on...
  3. T

    Hello old friends

    Thank you for your reply , yes I acknowledged my post years ago , not currently working with doctor , that whole ordeal 5 years ago was very overwhelming ( there’s also a note on my file that says I’m a hypochondriac or something so I’m dismissed very early ) and to be honest , I read the advice...
  4. T

    Hello old friends

    Going to make this short , I don’t know if part of me is just looking for opinions or reassurance, but I thank anyone willing to take the time to respond . I posted here 5 years ago very dramatically and was very worried about ALS , the thought and symptoms never left . I am here today to ask...
  5. T

    may die without diagnosis

    My sympathies go to you and your family
  6. T

    may die without diagnosis

    A diagnosis would help because at least I'd have some help especially with my breathing, I mean there is a way to help people with als that is different than someone with copd, there is a different procedure, when u need assistance from a doctor if you have als there are different procedures...
  7. T

    may die without diagnosis

    I did not mean to offend anyone I apologize just feel all alone
  8. T

    may die without diagnosis

    Wow very nice of you, can't you see my frustration of how fast this progressed and btw when I go to e.r they are more concerned about my heart rate than als so they just say yea yea you're fine. I have yet to see a neuro. I'm not saying this is the wrong way but you are at least fortunate to...
  9. T

    may die without diagnosis

    That's what's so scary about this all I feel like I'm at end stage, I know it sounds nuts but I'm serious this is why I came here, you guys can't say it's impossible that bulbar symptoms progressed in 2 months to end stages. Can't breathe can't cough affectively, swallowing is way to easy...
  10. T

    may die without diagnosis

    Good to know
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