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We are still more or less OK with daytime voiding, but we use a jock-strap thing called a McGuire Style Male Urinal for night. You can research it on line to see what it looks like, which is where I found it. It is a variation on the condom catheter, which we found to be worthless, too. I...

I agree that I hate this disease. We need to have this discussion, but my Jim refuses to. He has been saying he wants to clean out the garage for months. I mention the two or three things the boys would like to have from out there, and he won't even let them go ahead nd take those items--He...

Good morning! Busy couple of months here. Can't seem to catch a moment to reorient my priorities. Just dealing with what's happening at the moment and trying to keep sane. Staying calm is out of the question. Even got a call from my bank letting me know that I haven't paid my credit card...

Good Monday morning! Ah, yes, computers--the blessing and curse of our generation! I read somewhere that it is possible for an old dog to learn new tricks, but at my age, I don't know how many new tricks I want to learn. And, yes, it absolutely imperative that you be proactive in all things...

Hi, Jim! I am also new to the forum. Haven't been on for a while because I am not computer oriented, and was having difficulty getting on and then navigating the site. My Grandkids have to help me with most of that. I also am from Virginia, and our care management is done through MCV. My...

Dear gracious lady! What a load you must carry. From your description of your father's symptoms, there may be something in addition to ALS or it may not be ALS at all. Whether any of us on the forum can answer questions for you, we are all here to support you with our kindest sympathy. Rant...

Wonderful news, Barbie! Congrats to the graduate! I understand about the rebellion stage! I had one of those--my middle child, who at 14 stomped his feet and declared "You're trying to run my life for me!" And I stomped harder and said, "You bet your boots, buddy! That's what parents do!"...

Good morning. I never know how to answer the "how's he doing' question. I can say "he's fine for now" and that would be honest. I don't want to stand in the grocery store aisle and give a litany of all the reasons why he is NOT fine, so I change the subject to something that person is dealing...

Tillie--I'm new at posting, but I am sure I understand most of what you are experiencing. My husband is about three years into his diagnoses, and we are coping with things as they arise. We never had a very tactile relationship in the first place, so doing for him now is difficult, because it...

I was terrified of the PEG until we actually had one implanted. The doctor recommended it in December, but I wanted to see the pulmonologist again before making that decision. No one had actually told me what a peg tube is, and as I'd never heard of it, I thought "peg" was a word. To me, a...