Search results for query: *

Hi Ann and as the others have said, welcome. This is an awesome group to either contribute or lurk with as we are all in various stages of our battle and can share some real insight as to how to live a better more fulfilling life. Remember, the disease does not define you!

Mike, I spent a week at Mayo to confirm my diagnosis and they sent me to a sleep study as well. They said that since I demonstrated issues with my throat a machine may help me get better sleep. I've been using it since June and can say that I don't really notice any change . . As for the...

Thanks for posting this . . . there has to be, in my opinion, some type of direct link to muscle injury and PLS. Of course I still have the problem of my brain say I can still do all of the things I did 25 years ago as well as pre-PLS, but over the weekend I was playing catch with a football...

So many discussions (pro and con) about the relationship between PLS and ALS. I am told PLS is "like", "in the same family as" and "similar to" ALS. I've been told that PLS is nothing like ALS . . . doesn't seem that way from my reading. So what say this group. I need to have an intelligent...

Thanks Mike, your words are comforting . . . this is someplace where we are all truly in this together . . thank you again.

Thank you everyone. Your words bring some hope that there is a future . . although different than I hoped and planned for.

Thanks Port . . . I really appreciate your kind words. I too have a great employer that has helped me first navigate short term and now long term disability. I don't know where else to turn right now, even my "shrink" seems lost in our conversations about my diagnosis and future. I'm hoping...

I don't know if it's normal to feel so angry and scared about my PLS diagnosis, but I am. Before my diagnosis I had "undefined symptoms", but since my PLS diagnosis in March I feel like my world, at 47, has come to a screeching halt. Gone are my career, some of my hobbies and many of my future...

I started down this road a year ago at the Cleveland Clinic and was told I had fibromyalgia after numerous tests. After my condition worsened my current doctor was convinced I had MS until the MRI's were negative. I get the whole process of elimination thing, but I don't think I could stand...

Why do you say that you're surprised? Just curious. This is so new to me I have no idea what to expect.