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  1. K

    Increased Anxiety about my ALS Risk

    Ok so I'm a 23 year old male. And I know this thread may seem ridiculous. I have really really tried to not let my anxiety get the best of me and post the typical "Am I getting ALS?" thread, but after several months I've caved. I really hope I'm not offending anyone by sharing my possibly...
  2. K

    Ubiquinol vs CoQ10

    Hi everyone. I was just curious about your familiarity and experience with ubiquinol. For those who are unfamiliar with it. It is simply the reduced form of CoQ10, meaning it has two added electrons, making it the "active" form of CoQ10. This allegedly makes it much more bioavailable to the...
  3. K

    ALS Emotions

    My father was diagnosed with ALS about 1 year ago. He is currently transitioning into the state of requiring an electric wheelchair full time. I'll try to keep this post brief. The news was obviously devastating for all of us; and my dad was put indebted soon and anxiety medication. This is...
  4. K

    Is This News Reason for Concern in sALS?

    Recent research has been published that links more cases of ALS to genetic origins than originally thought. What I'm wondering if these findings mean more cases of sALS will become fALS... I was previously under the impression that most genetic mutations that occur in ALS are not inheritable...
  5. K

    Can Sporadic ALS turn into FALS?

    I hate to be the worry wart on here. My dad was diagnosed with ALS December 2013; and as far as we know, there is no history of ALS in our family; and none of my dad's siblings have ALS. I'm thinking FALS must start somewhere; so I'm wondering if any of you have seen a case of seemingly...
  6. K

    Contagious Patterns in ALS?

    I'm wondering if anyone else has seen cases of ALS that show characteristics of a contagious disease. I know every scientific source I have read lists ALS as absolutely not contagious, but I have also come across a couple cases in my area where BOTH PARENTS of a child has been diagnosed with...
  7. K

    Acetyl-L-Carnitine Slows Progression

    This isn't a new research study, but a double-blind study in 2013 showed that median survival of PALS treated with 3g/day of Acetyl-L-Carnitine was 45 months versus 22 months in the placebo group. Randomized double-blind placebo-controlled trial of acetyl-L-carnitine for ALS. AuthorsBeghi E...
  8. K

    Symptomatic treatment with dextromethorphan (Delsym)

    I was recently reading some information online regarding dextromethorphan, which is an active ingredient for cough suppression, and apparently is an antagonist of glutamate receptors; which, as we know, are suggested to be partially responsible in neuron death in ALS. The information I read...
  9. K

    Walk to Defeat ALS Pittsburgh

    Hey everyone! My name's Ken, and I'm new to this forum. My father was diagnosed with ALS this past December, and it has definitely been a life-changing experience. I am a new graduate of the University of Pittsburgh and I'm currently involved in the Western PA chapter of the ALS Association...
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