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  1. C

    Questions on ALS symptoms

    I had my second EMG on 6/24 by the neuromuscular specialist and director of the ALS center, again generally pointing to a c6 radic although the neuro did find a few random fascics in my calves. He tested several thoracic paraspinals as well as my tongue (under chin, which hurts a lot by the way...
  2. C

    Questions on ALS symptoms

    Thanks so much Dusty. Yeah he mentioned the c6 nerve root muscles and "a few other areas" which I didn't ask about at the time. I like your idea of getting specifics though. Also, an EMG technician will do part of the test (I'm assuming the NCV) but I'll ask about specifics of that too. Thanks...
  3. C

    Questions on ALS symptoms

    Just an update. The dr I was supposed to see was actually not a neuromuscular specialist and didn't want to see me to answer those kind of questions (which is good I guess). They managed to get me in today with a neuromuscular and electrodiagnostic board certified specialist who is also the...
  4. C

    Got diagnosed today

    Music, I'm so sorry to hear about your diagnosis. It doesn't sound like your VM neuro was clear or particularly compassionate with you. I was wondering if you went to the Seattle Virginia Mason. The director of the ALS clinic there is Dr Michael Elliot (he's also a neuromuscular and...
  5. C

    I'm back after waiting off and it doesn't look good, help

    Yeah, echoing what Kosmokatten said, nothing of what you've told us your neurologist said about the EMG is indicative of ALS. I'm not an expert by any means but as far as I know EMG evidence of ALS would consist of acute (positive sharp waves, fibrillations, fasciculations), and chronic...
  6. C

    Questions on ALS symptoms

    I went in for follow-up with my local neuro. As expected he felt no further EMG investigations were required because there were no PSWs/Fibs anywhere other than along the c6 nerve root. And no fascics detected. I did mention to him that I've had some issues with a feeling of extra saliva and...
  7. C

    Questions on ALS symptoms

    Thank you Tracy, I'm very sorry about your diagnosis. I'll definitely keep that appointment for reassurance at least. I'm also meeting with the local neuro next week. I'll ask about expanding the study to thoracic paraspinals and something bulbar as well as my other arm, as well as why he didn't...
  8. C

    Questions on ALS symptoms

    Thanks for the response. The EMG wasn't done at UW, I have an appointment there for 6/27. It was done by a local neurologist on the eastside, who (supposedly) has some experience with neuromuscular disorders. I'm also waiting for a call from the head of the ALS clinic at VM (which I am glad I...
  9. C

    Questions on ALS symptoms

    Thanks so much Dusty. The difference you pointed out is exactly what my neuro said. I'm not sure what other leg muscles (he did 20 all-together) he could do but I can definitely ask about the paraspinals and other arm when I see him next week. I know it sounds a bit wacky and probably is but I...
  10. C

    Questions on ALS symptoms

    Wow, I'm very sorry Max. What diagnosis did the previous neuro give you based on the emg? Was there something they missed? Thank you for answering, Chuck
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