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I'm not sure where to post this, but I want to let you know that my wonderful husband died last week. This Forum helped him a lot over the 15 months he lived with ALS. Thank you all for the love and support you give each other. Alex's wife Tina

I used to be a voracious wine consumer. Loved the taste and the relaxed feeling. Haven't been able to consume any for months. Has anyone slipped a glassful down the tube? Would this be bad for me or just poor etiquette? Wouldn't waste a fine cab, just run of the mill stuff. Alex

Max, if you decide to start your own group I'll join. Alex

My appetite is nonexistent. I'm bloated after every tube feeding. No change in smell. Alex

I sometimes feel like it is a bad dream. Never imagined I could get ALS. So much lost...

I'm not sure that a directive by a spouse would work unless she has a power of attorney. No reason not to have the issues laid out in an Advance Directive. A do not resuscitate order would also be a good idea. These forms are readily available through hospice or your local ALSA.

I'm a fan of Ativan. Was introduced to it a year or so ago when I was MRI'd. A month ago I suffered a panic attack and was prescribed a few Ativan. Really works. Now that I'm on hospice I get as many as I want. Take one or two a day whenever I feel tense. Used to go to the Y and jump on the...

Happy Birthday Mr. Gooseberry, and many more! Alex

Yes Max it good to have you back. You'll have to explain how you got this infection. Did you violate one of your own ruled by being around sick people. It's easy to violate a rule as I found out today in my bathroom. Get well. Alex

A member of our community, Lou Ferrari, just fell to ALS after a seven month struggle. He was only 52. He was a fierce competitor. At our October walk my team raised $20,000 to come in second place. Team Ferrari came in first with $75,000! He will be missed. Also, I fell for the first time...