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  1. G

    Bulbar Onset ALS Diagnosis

    NikkiJ Thanks for your information. I am going to order a Dynavox through Medicare and my secondary insurance. I'm hoping the secondary will pick up the extra 20% that Medicare doesn't pay. At this time I can use my hands and I am still walking but I'm noticing I'm getting very weak and am...
  2. G

    Bulbar Onset ALS Diagnosis

    Thank you for your information on the communication assisted devices. I have ordered one through the speech therapist at the KU Neuro Clinic in Kansas City. I ordered the Maestro Dynavox. I hope this one is a good one because it was rather confusing determining which one to choose. I am...
  3. G

    Bulbar Onset ALS Diagnosis

    Hi all, I had my second diagnosis yesterday at Mass Gen in Boston. The diagnosis was not quite as conclusive as it was a KU in Kansas City. The neurologist says it takes one year to diagnose ALS because it is a process of "rule-outs". However, the diagnosis from KU looks pretty convincing...
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    Bulbar Onset ALS Diagnosis

    Thanks for your reply and all others on the thread. Information is power and I need all I can get at this point. It appears that bulbar onset is only present in about 25% of cases diagnosed. Also average age is 40-60. I am 76 and it appears that I have bulbar onset. Does anyone think it...
  5. G

    Bulbar Onset ALS Diagnosis

    Thanks for your response to my new diagnosis of ALS. I am going for a second opinion on May 13. My diagnosis was determined at KU Medical Center in Kansas City. However, my second opinion will be at Mass General in Boston. Do you know anything about how many tests should be done before a...
  6. G

    Bulbar Onset ALS Diagnosis

    I was recently diagnosed with ALS. My only symptoms are speech and swallowing disorders. I have had brain CAT scans and MRIs, swallowing test, carotid artery test and a larynx exam and all came up normal as well as the CPK test. Should I assume a correct diagnosis based upon one EMG that was...
    • ghevener
    • Thread
    • als brain bulbar bulbar onset diagnosed diagnosis emg neurologist onset second opinion speech swallowing symptoms test
    • Replies: 26
    • Forum: Newly diagnosed
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