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  1. Gracious99

    Raymond has passed away

    Re: Giving oxygen now My sweet Raymond lost his fight with ALS last night, July 30, 2015. He was surrounded by love; his family and friends gathered around him, I'm certain he could hear everyone as they laughed and shared stories about his crazy antics. I know he felt the love and joy and...
  2. Gracious99

    Giving oxygen now

    Raymond has had a turn for the worse, second day back and work and I got a frantic call from our son that Raymond woke up and was disoriented and confused, didn't know where he was or what was going on. I rushed home, called hospice nurse, and found that he was a little more lucid, but still...
  3. Gracious99

    O2 levels

    My husband's O2 levels were running at 85 when he had his PEG installed, they dropped to 75 last week when I called to admit him to hospice. At his last two hospice nurse visits, his O2 was at 95. The change seems strange as I figured the levels would continue to slide, but he has been using...
  4. Gracious99

    PEG tube update + question

    Raymond did fine, all the discussions about oxygen and ALS really helped us today, I was able to be an informed advocate for him, and shared info with a couple of great nurses who hadn't dealt with ALS patients before, so a huge thank you! Now a practical question, what do we do with this tube...
  5. Gracious99

    PEG tube today

    My husband goes in today for his PEG, he has been quiet and silently anxious all morning. I know he doesn't really want the procedure, and he has a huge amount of anxiety about dying during the procedure, but he knows it's now or never because of his breathing decline. I guess I don't need any...
  6. Gracious99

    Wheelchair carrier

    Quick question, Does insurance pay for a trailer or lift kit for the PWC? We're getting a permobil PWC, and that baby is heavy! Tried to use a ramp I bought off the Internet, and it was way too heavy to be safe off the receiver. So I looked into the chariot, which has its own wheels, looks...
  7. Gracious99

    feeling terrible with no cause- advice?

    Hey everyone, I've been a member here for sometime, just reading your posts and getting advice quietly, but I haven't seen any posts on what my husband seems to be going through right now. He says that it's not in pain really, but that he just feels terrible all over. He sits with his eyes...
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