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  1. C

    bulbar symptoms and more

    I walk with the aid of a rollator due to spasticity and now I am experiencing hand weakness and a bit of slowness when talking. My question is; when bulbar symptoms increase am I going to see muscle sagging in my face? A visual change in my appearance? And I know PLS progression is much...
  2. C

    swollen feet

    Hi. Recently I have noticed that my feet look differently. Figured it out. My toes are really swollen. Especially the big and little toes. Before my taking baclofen I have experienced swollen ankles, bi-lateral, so it isn't a clot, but now it's the toes. The only thing I have changed in...
  3. C

    Recently diagnosed

    Hi: I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my...
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