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    So watcha ya'll do for fun?

    This last Christmas I painted glass ornaments and made beaded wire hangers for them. I painted and beaded polymer clay ornaments made with cookie cutters, (cats and hearts). The paint is called Alcohol Ink. Really nice and easy to work with. I gave them as gifts and the clay ornaments I used...
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    How many PLS'ers are on the forum?

    I'm in. Since 2009. Use a rollator and have zero balance. Affecting arms/hands somewhat and speech/saliva. I can't tell if it's progressing quickly or not. I think the walking progression has stopped. Hopefully. Much worse and I'll be in a power chair.
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    Facebook group

    Hi Nikki: You sent me the link to the Facebook Group and I opened it from my work computer. Since I am not too computer savvy I would like to know where I go on the forum to get that link again from my home computer. Thanks, Chris
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    In Michigan for opinion number ... six?

    Hi Suzannah" My story is exactly opposite of yours. I was diagnosed with either Parkinson's or Dopa Responsive Dystonia because of what the doctors thought was dystonia and not spasticity. I had a terrific response with the drug sinemet. For two days only. I spent $5000 to take a test which...
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    Facebook group

    Hi Nikki: Please send me the link.
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    A couple of questions about how to manage with PLS

    Hi Eydie: WELCOME! As always, sorry you have this disease. Difficult to cope with at times. From your post it seems we are at the same place with symptoms. I use a rollator, fall often due to ero balance and my speech is garbled. I talk very slowly, which is the exact opposite of my...
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    A couple of questions about how to manage with PLS

    thanks TB My thinking was the same regarding some shielding device however the Mass. study asked specifically if I had any metal in my wrist. I said no and he was relieved. I'll let you know.
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    A couple of questions about how to manage with PLS

    Thanks Nikki. That was extremely helpful. I will discuss titanium with Jennifer @ MA and my nurse practitioner at NIH. And the head of MRI dept. at UCSD is a friend. I will be very thorough. Thanks again. Great forum!
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    A couple of questions about how to manage with PLS

    Thank you for your kind replies. It took about 8 days but I am finally going to ucsd specialist about my wrist. My concern is this: if the repair is surgery and a metal plate is attached then I will no longer be able to have brain mri or any other for that matter. Are Mri's important for my...
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    I keep gaining weight

    I don't have a weight gain. More a shifting of the sands. I am becoming my mother. I am getting a barrel body. I have a rowing machine that I can't use until my wrist is fixed. I can no longer swim. No treadmill or stationary bike. Due to inactivity I now have osteoporosis and the side...
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