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    Hospital

    Does the VA provide medical beds that are easier to get in or out of. Thanks Patrick
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    Progression of ALS

    Hello, Als was confirm 02/14 it probably started around 07/13 it did get my total attention until 12/13. On the day of confirmation 02/14 I drove 40 miles from the hospital to home. My only physical problem was muscle twitching and some atrophy in my left hand and arms. 6 month later (now) both...
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    Va vehicle grant

    I did get the Va grant for a vehicle 20k which is amazing to me. I will probably go with a dodge grand caravan sxt. I will pay out of mt shallow pockets any thing over the 20k. Should be around 5k from pockets. My question is am I responsible to install PWC access. Which we all know is very...
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    PWC Vehicle

    I have a permoble PWC.. Looking for a SUV to transport it. Any recommendation. Money is an object. Take care Patrick
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    Beautiful group of people

    Attended an Als patient meeting yesterday. Really for a selfish reason, wanted to see what other Als people looked like in different stages of Als. Meet 20 people in all stages from very low symtoms, late stage Bulpar, PWC, breathing machine. There was one common demote actor. They were all...
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    Accepting help

    Short version. Lived in a poorer family father gone 2 brothers and a a sister. Mother who was young tried and did her best. The kids for periods took care of themselves. Cleaning, cooking, laundry, etc. I have always since then had trouble with someone helping me. Then Als happened I still...
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    Gasping for Air

    Last nite I woke up gasping for air it felt like my throat closed. This last for about 5 to 8 seconds. Then for the next 3 seconds it opened back up and I was breathing normally. This is the first time this has happened. Is this Als related. Take Care Patrick
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    Homemade soup (Barneyswife Linda)

    I read a post by Linda about homemade soup. I almost fell off my bar stool. I swear my best days are when I eat homemade soup. Doesn't make a difference what kind. I just passed it off to mental up bring. That soup fixes everything. I know it don't but in my case it makes me feel the best when I...
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    Biting mouth

    I am new als. Lately Been biting my tongue and cheeks. Not normal bites but chunks. I have 3 active healing bites in cheeks and one beauty on the tongue. It is kins of awaking. With Als I quests being careful with everything is key. Take Care
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    Als and Drinking

    I do have Als confirmed and verified. I have been a beer drinker for 45 years now. My tolerance level is high until recently. Now if I drink at the same level as before ( 6 to 8 beers) my coordination in legs and feet are gone each simple step is a journey not to tip or fall. In the past 6 to...
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