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this was how mine started. I was extremely tired and slurred on occasion. It got very slowly worse over the next 8 months. I can still talk normal if I limit my speech to short phrases.

Most of my symptoms are slowed speech. My eating, breathing, and swallowing is unaffected. I also have some arm weakness.

Yeah I get the classifications, but if it's not ALS, Myasthenia Gravis, Issac's Syndrome, PLS, PPS, SMA, etc.. Can it just be MND or does it always turn into a different diagnosis?

Anyone here have any experience with drinking and neudexta?

Yes I've had the cervical MRI and it was clean. My Brain MRI wasn't. My Mayo records have 2 diagnosis, #Motor Neuron Disease and #Copper Deficiency. I am treating the latter with supplements but the MND is confusing to me since I can't imagine what else would cause it other than catching ALS too...

This is it verbatim. "evidence of a chronic neurogenic process affecting the right C8 and distal left C7 innervated muscles and a chronic neurogenic process affecting the right tongue. This does not currently meets El Escorial criteria for amyotrophic lateral sclerosis"

Did she get treated? Does the have motor neuron symptoms? Thanks.

Sorry, diagnosis of "possible ALS".

They were all Neuros and ALS specialists. I have fasics, MRI finding pointing towards ALS (I know this is very rare), clinical weakness, and sometimes slurred speech (bulbar symptoms). My EMG is abnormal but doesn't fit the El Escorial criteria. None of them could tell me what "possible" means...

Anyone else here dealing with or have dealt with a "possible" diagnosis? I've been given this by 3 different specialists. Not sure where to go from here. Thoughts? Experiences?