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Party here?
Been lurking for awhile and thought to try you out. My husband was diagnosed a short time ago, although we both suspected for a year. He is part of an SOD1 family and we have lost and cared for several family members. This time the disease has affected my spouse now and we have young kids...- GalFriday
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- diagnosed family kids sod1 young
- Replies: 1
- Forum: Familial ALS (FALS)
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Caregivers with Young Kids
Are you a full time caregiver for someone with ALS and kids in the home? I would like you to share your strategies. The world of ALS is not new to me unfortunately with an aggressive form of familial ALS. We have kids in elementary school and anticipate a rough ride. We have been in contact...- GalFriday
- Thread
- als caregiver caregivers early familial familial als hospice kids stages young
- Replies: 9
- Forum: Current caregivers