Search results for query: *

  • Users: GilWest
  • Content: Threads
  • Order by date
  1. G

    Supplies to give away...

    I have numerous supplies to give away... -Foam Trach Ties -Shiley 6 inner cannulas -14 gauge suction catheters -Suction tubing. -Sterile gauze trays -Trach care kids...so many trach care kits -A humidifier for Trilogy vent w/several reservoirs
  2. G

    My Advice: Stay Strong

    After managing my mom's ALS for 3 years, my advice is to stay strong and do not dwell. There are so many decisions that you absolutely ARE NOT going to get every one of them right. Yes, you might do something to hurt your PALS. I dozed off one evening and awoke early the next morning to...
  3. G

    Mom passed last night...

    She was in multi-system failure, so we discontinued the vent. She died peacefully in her home like she wanted. I will use this post to get on my soapbox one last time concerning vents and trachs. Consider the option carefully and consult a pulmonologist that is connected to an ALS center in...
  4. G

    You know you are a battle hardened CALS when...

    You read photo essays about ALS, look at the pictures of the PALS, compare their equipment to yours, and wonder what insurance they have and why yours won't pay for it...
  5. G

    Wasting Away...

    Mom has lived way longer than she should have. Palliative care mentioned cachexia yesterday. Too much fluid and she basically drowns, too little and she basically starves. Trying a higher calorie feed. For my comfort more than it will benefit her.
  6. G

    Infections

    Just keep coming. This is what comes when life is prolonged past the point of any logical reason. We now have a blue stained catheter and drainage bag from some bacteria. Just say no to long-term mechanical ventilation in most instances. DO NOT let a doctor talk you into it. It is a...
  7. G

    The Trilogy is an amazing piece of engineering...

    Although I would never recommend long term venting, the Trilogy has amazed me. 1.5 years 24 hours a day and not one mechanical or programming issue. The battery life is amazing and it just does its job day after day through ambulance rides, ER visits, and and power outages.
  8. G

    To treat the pneumonia or not..

    Mom most certainly has some pneumonia. Sats are lower and lungs are very congested. Palliative care recommended not treating due to her condition versus the ordeal of a hospital stay as it will most likely keep coming back. Mom is not very alert, but I still know she is in there. I chose not...
  9. G

    After ALS...

    I sincerely am going to seek counseling for PTSD after this is all over. I may have to be careful and ease back into everyday, normal, free life slowly as to not become overwhelmed. Two years nothing but thinking about ALS and caregiving 24/7 has taken a toll.
  10. G

    I see fasciculations in Mom's face now...

    Just started this week...
Back
Top