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It's been a long time, my family. I thought I'd pop in and give you an update. I'm still working on physical recovery. Tomorrow I'll have surgery for a prolapse that was aggravated, if not caused, by all the heavy lifting. I've been waiting for several years to get this done and I'm rather...

Matt has been gone four months, and it feels like a lifetime. On the other hand, I think I'm just now mourning what we went through. All the losses that I was unable to mourn because we were too busy trying to live--I think they are battling their way out of the box I locked them in at the time...

We set my darling husband, Matt, free today. He made me promise to do it, but he clung to life even when life offered him nothing but pain. He was a fighter to the end. He was comfortable, and he did not appear distressed--but he was stronger than anyone imagined. He was surrounded by his...

1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...

FTD was my greatest fear early on. Then I thought we'd escaped it. Now...not so sure. Memory loss...cognitive impairment (slow processing)_ and now full blow hallucinations and bad behavior. I've been told at least once to find someplace else to live. Im not taking the mean remarks...

We have an older Permobile 300 that my husband bought as a backup to his backup. We put a new controller, batteries, and tires one it a couple years ago.. While it came in handy a few times, he can no longer use this chair. Power recline, tilt, and lets, but no elevator. Free to a PALS in...

I've been considering getting the I Robot vacuum ever since Nikki posted about it. I finally bought the 960, and I'm in LOVE. It gets the hard floors very clean!! The first time it ran it was all over the place, but now that it's mapped the house, it's very efficient. We vacuumed or dust...

Hey peeps, I need your collective wisdom. We are in the hospital, day 9 post trach/vent. They have had him on a constant trickle feed with the same formula he was tolerating at home (2 cal) , and his stomach and colon are filling with gas that won't move. His stomach gets so distended that he...

I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...