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  1. K

    Improvement in symptoms

    My wife was diagnosed with ALS in August 2013. She is on a bipap and has small degree of strength in her legs and in her arms, although not enough to be functional or useful. She also has had a ng tube for at least the past 3 months. She was experiencing a fairly rapid decline for about the...
    • kaumy2
    • Thread
    • als bipap decline diagnosed improvement muscles neck brace neurologist riluzole supplements support swallow symptom symptoms
    • Replies: 19
    • Forum: People with ALS (PALS)
  2. K

    Stem Cell Treatment

    Has anyone had any stem cell treatment for ALS from Beijing Tiantan Puhua Hospital or the Cells Center China in Beijing? I saw that they had a stem cell trial listed in Clinical Trials. gov so I wondered how legit they are. I would like to know more about it and how successful the treatments were.
  3. K

    Fasciculations

    Maybe I made my question too vague and too much info so will try again... My wife has been diagnosed with PMA. She experiences fasciculations only in her sleep...NONE (zero) during waking time. They occur primarily after about 10-15 minutes after falling asleep and are mostly (as I would...
  4. K

    Fasciculations?

    I'm new on the forum and my wife was diagnosed with PMA in July 2013. She has fasciculations only at night during sleep. They were very intense for about 3 months throughout the night. For about the last 4 months they have decreased significantly and now occur primarily as muscle movements such...
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