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God saw you getting tired, When a cure was not to be So he wrapped his arms around you, And whispered, "Come to me" You didn't deserve what you went through So he gave you rest Gods faarm must be beautiful, For he only takes "The Best" And when we saw you sleeping So peaceful and free from...

Please read. news.ubc.ca/2014/02/17/researchers-discover-how-als-spreads/. We were fortunate enough to meet with Dr. Cashman at the ALS Center, as of Aug.1/13 he told us he had a serum in the U.S.A. that was being tested and felt it may very well be on the market in 3 years time. It will...

Which shoe will drop first, which hand will need splints first, when will he need more help breathing, when do I need to start putting all his food in the food processor, when will I not be able to figure out what he is trying so hard to say and write! Where will we be next year at this time...

Yesterday started out as the day from HELL! Bipap, mucus secretion machine and cough assist machines were all arriving, and my Barney was in a major dither. Throwing things, pushing at me and trying to write something down, just could not figure what he was trying to tell me. It took me a...

Hi everyone: My Barney has three dogs that are definitely his best friends but... he also has the T.V. remote. Our satellite dish needed to be refreshed so I made the call and talked to the tech. he wanted the T.V. set turned on which I did and he then explained it would take a maximum of 5...

Hello All, I have been reading all of your posts and gotten a lot of information from you all and am very grateful. Thank You! Now it is time to get my head out of the clouds and face reality! My husband was diagnosed with Bulbar ALS by two neurologists in the spring of 2013, then we were sent...