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Hi Starente 15 ! Sorry to hear of your dads diagnosed. I too was once diagnosed with ALS. I spent lots of time here on forums. Just reading posts from all the Veterans ( if I may call you all that) helped me cope. How long ago did your father get diagnosed ? And was it by an ALS expirrianced...

Read this on a t-shirt, but thought it is great inspirational piece: Defeat is not getting knocked down; it's not getting back up ! Unknown

That was supposed to start out"texgirl" . I got auto corrected

The girl, So sad to hear about your mother ! Wish you and your family the best. You all could uses break! I honestly have never heard or seen a situation like yours. We should probably call you IRONGIRL ! Take care! Matt

I am so sorry for you Kim. Hang in there and don't forget about yourself! Your MD I'm sure would be more than happy to help you if you need it. Don't let yourself get too down! I have gone back and forth between ALS and MMN diagnosed. I was already on anti deppresents so I think I handled it a...

Hi Vincent, sorry to hear of your diagnosis, either way! I am kinda in that same boat with you! Maybe if we paddle real hard we can get out if this mess! I was diagnosed with ALS first, after all the tests were done. Then was getting ready to go for second opinion and did a second EMG. It didn't...

Thank you so much ! I will check in regularly at least to read posts. And I will update when I know more. THANKS AGAIN ! And good luck to all !

Thanks , Max and Tillie ! I didn't think about doing a search, just been reading all the current stuff. I'm happy to say its looking like I might be getting kicked off your club! Think now it is MMN. Did spinal tap last week and had higher levels of protein than that of a ALS sufferer. Kept me...

Thanks Casey! That's a good way to describe it. And yes you are right, those numbers don't mean anything. Still not sure why they told me all that? Guess just to prepare me for the worst. The main nurse in the nuero dept. said they had a meeting of all the nueros and nurses last week and the...

Thanks for replies. ! Yes I do have atrophy. Right hand started with one finger in July and is now curled and wrist falls over kinda limp like palsy. Had lumbar puncture Thursday , and did two rounds of IGG drip treatment, which was antibodies to try and replenish mine. Think now it is CIDP...