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  • Users: Janeg
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  1. J

    Gluten, Glutamate free diet

    Hello, I'm not a wanna-be anything, just a worried person who knows how to research things, nor am I suggesting anything nor have I suggested anything except that as medical science offer theses with an MND or suspected MND not much help that it's helpful to look elsewhere for what we can do to...
  2. J

    Gluten, Glutamate free diet

    I meant MCT oil in my last post. It is used in ketogenic diets and is much more concentrated than coconut oil ( which can get on your nerves after a while). I realize many people with possible or diagnosed ALS would find it hard to totally change their diet. I personally didn't think about it...
  3. J

    Gluten, Glutamate free diet

    I forgot to mention in my last post that I also am taking many supplements and vitamins, mainly through a vitamin company called Life Extension (not plugging them but they have a very comprehensive section on ALS which I found during my many web searches for info), along with MND oil ( used in...
  4. J

    Gluten, Glutamate free diet

    Hello all, i am still on the gluten/casein free, glutamate free and low carb diet, and have gone through some weeks with no fasciculations at all. In a meal prepared for me by an acquaintance, who was supposed to avoid using products I cannot tolerate, there was something that I could...
  5. J

    Gluten, Glutamate free diet

    still eager to know: anyone in this forum on a gluten and/or glutamate-free diet? does anyone's dr. talk about diet at all?
  6. J

    Gluten, Glutamate free diet

    I think I was put on Rilutek so I could qualify for a trial for a new medicine but I wasn't weak enough for it in the end. I am also taking many supplements and vitamins (maybe 20!), coconut oil and flax oil...why not? It makes sense that diet can help ALS or MND because diet is also important...
  7. J

    Gluten, Glutamate free diet

    I also read that book recently. I have even found a mainstream research paper which talks about a man whose Celiac symptoms mimicked those of ALS. I would think every neurologist who treats ALS (and mine is a such a specialist) would consider all the possibilities for diagnosis and also...
  8. J

    Gluten, Glutamate free diet

    Since it looked like I might have some MND in August I went gluten and glutamate free. While my EMG is consistent with ALS according to my neurologist I have no muscle weakness. My symptoms have improved over the past three months, going up and down- sometimes no fasciculations/twitches/cramping...
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