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  1. C

    Anyone had tracheotomy?

    of course it is a personal decison. she also decided to ask on this forum so she can gather information and make a decision based on the experiences of others... thanks for the replies, it was helpful.
  2. C

    Anyone had tracheotomy?

    She wanted us to put the question up on an ALS forum to see what others say... So we can gather information of others who have had experience or been through it so she can make a decision.
  3. C

    Anyone had tracheotomy?

    My fiance's grandmother has had ALS/PBP for about a year and a half and we've got her a feeding tube almost a year ago. Her phlegm has gotten worse, even when switching from formula to blended foods, and her doctor suggested having a tracheotomy. Just wondering if anyone has had it and if it helps?
  4. C

    Doctor allow blenderized meals?

    Thank you both so much for all your help and suggestions. We can't even express how much we appreciate this support and connection :)
  5. C

    She had lost voluntary muscle control in throat about 6 months ago and been on tube only since then.

    She had lost voluntary muscle control in throat about 6 months ago and been on tube only since then.
  6. C

    Thank you so much!! We are totally aligned with everything you said :) We've been doing raw...

    Thank you so much!! We are totally aligned with everything you said :) We've been doing raw vegan smoothies through her tube, but then we had gotten a clog of something, had to get tube replaced and then the doctor scolded her to only use formula. Since back on formula, lots of problems with...
  7. C

    Doctor allow blenderized meals?

    I do need to get permission from a doctor because without it my grandma won't allow us to put blended food in the tube. She screams and cries when we suggest it now because the doctor already said no. She's a good girl and won't break any rules. She is back to her mucous and constipation...
  8. C

    Doctor allow blenderized meals?

    It's my grandma who needs to be told by a doctor it is okay because she is a 'good girl' and won't do anything the doctor already told her not to do. The doctor says no and she's sold, that's it. But we can see that it causes her more mucus and constipation that wasn't happening with the blended...
  9. C

    Doctor allow blenderized meals?

    The feeding tube formula that has been provided (we've tried many different formulas) is causing my grandmother's health decline. :sad: I sometimes give her real food and have been for the last week with great results. :razz: She was no longer constipated and feels so much better without the...
  10. C

    hello! I read on a thread that you are raw vegan and I am thinking of doing this for my grandma...

    hello! I read on a thread that you are raw vegan and I am thinking of doing this for my grandma. If you have any tips for me, please let me know as we are brand new to this.
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