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Update. Thank you all for your incredible patience. I will stay under care of ENT doctor and Dr Mitsumoto said to follow up with Dr Latov. Dr Mitsumoto is semi retiring. No new pts and will do only research. Attached is my EMG. Fasiculations and some neuropathy. Again Thank you

I’m sorry. Thank you.

Thank you. Yes I will post results without my name. Is bulbar onset UMN or both UMN and LMN. I’m curious why he said EMG being negative isn’t diagnostic that “with this disease there is a gray area” I had read the stickies normal EMG no ALS. Also Dr Latov says this normal EMG no als. Dr...

I’m just scared it won’t be… He is also the first MD and such an excellent one who doesn’t tell you a negative EMG isn’t necessarily the answer. He said something about ALS and gray areas for diagnosis. But I would feel better having a clean Bulbar EMG. Though he pretty much said it was up to...

Thank you. I am scheduled for my EMG with bulbar muscles as well on 7/20/23. So nervous. The brisk jaw reflex really scares me. I’m noticing facial twitching. I can only hope for best. Thank you all for taking the time to answer. Yes Dr Mitsumoto wants me to follow up with Dr Latov as he...

Yes. Dr Latov does not do bulbar testing. They are both part of the same hospital system. So I went to see Dr Mitsumoto. Yes he is ordering Bulbar EMG “if I wanted it”. I asked Dr Mitsumoto about this reflex after I read pt portal note where I saw brisk jaw reflex. I attached his reply. So...

Thank you. I had my appointment with Dr Mitsumoto at Columbia today. I’m attaching exam. He ordered EMG to include bulbar testing though he stated that it isn’t going to give me a definitive answer as there is a lot of “gray areas”with bulbar ALS. Basically he left it up to me if I wanted EMG...