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Hi!! Im a 38 year old mother of five with a new diagnosis of mnd/als. What can I say, it stinks!! We are getting use to all the health care professionals coming and going and trying to deal with the reality of the situation. The worst part is my husband will be a solo dad of five. Hopefully not...

Thanks for that. Good to know it is a pain free disease because I definately am not pain free. Everybodies response to the cramp is to check my hydration and take magnesium however both of those things are covered for me and this is not just normal cramp it is debilitating cramp/spasm of the...

Ok, Ive figured out how to get around this sight now and realise I shouldnt have posted withou reading stickys(had never heard of them). I need to be patient and wait for my emg test.

Hi everyone, Im a 38 year old mum who is presently undiagnosed. About a year ago I noticed that I was getting a ridiculous amount of cramp. Mostly in my lower legs affecting my right foot and in my arms and hands. I have to jump out of bed most nights just to stand on my right leg to flatten my...