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Good Afternoon, Let me start off by saying that I am sorry if these questions become redundant. I know I'm on a ALS forum and I'm relying on PALS to give me advice. With that said I like to give a brief description of my symptoms since they started. 2011- started with muscle twitching in my...

As some you may know I have been in undiagnosed limbo for quite some time which is good as my neurologist that has been following me for over 4 years doesn't believe I have ALS. As for my symptoms it appears that I have something going on and my Neuro admits to it but does not know what it could...

Hello all, I need opinions on some troublesome clinical findings plus emg results. As many of you know I have been seeing and following up with Neuromuscular specialists here in Florida for a few years now. While I still don't have any firm diagnosis I do have an abnormal clinical exam plus...

I need support and I dont know who else to turn too. I realize we all have our path we need to walk alone and I know you all have been diagnosed with ALS but I really dont know who else to turn to in this time as no one understands as they only see me as a person who is not dying at the moment...

Does anyone here know if there's a connection with high lactic acid and MND? My doctor is doing another EMG and at that point selecting a muscle to biopsy. I know there are a lot of different diseases associated to high levels of lactic acid and strenuous exercise can cause it as well. I haven't...

Hello everyone, Just a quick update. Still no diagnosis or name for what is going on with me. Does anyone know if Baclofen suppresses the reflexes. My reflexes are always changing sometimes hyperreflexive and other times normal. I'm a mystery what can I say. All I know is that the twitching has...

So first I want to thank everyone for your time and effort in trying to help with my issues over the last 4 years. I have been back to USF and UF but still no answers other than they don't believe it's ALS but PLS is not ruled out based on my reflexes. Plus they have said that I have been...

Happy fathers day. I have been here for almost 4 years. I had several clean emg's until my last one where my doctor found chronic denervation in my two calf muscles nothing on my thighs or left arm. My doctor said he thinks I may have some type of heriditary motor neuropathy bUT my NCS was...

Hello, Would during if anyone has been told that they probably have a (congenital or heriditary motor neuropathy)? After 4 years of seeing doctors my ALS specialists did an emg and said he believes in have a congenital or heriditary motor neuropathy and that in some of the cases clonus is...

I have posted on here many times over the last 4 years. I started with abdomen twitching 7 years ago to body wide twitching 4 years ago. I have been seen every 3 months at 2 ALS centers by two ALS specialists and what I have so far is. Positive Hoffman Very brisk reflexes all over even my jaw I...