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  1. T

    LRP4 antibodies

    Haven't been on here in a while since I was diagnosed with Myasthenia Gravis a year ago. Oddly enough, I am seronegative to all of the MG antibodies, I have tested negative to ACH, receptor, binding, blocking, musk and Lamont eaton antibodies. Their is a new antibody on the block though, LRP4...
  2. T

    It's not always ALS

    So I've been at this process trying to get a diagnosis for three years now. It's been a hard road. I am still in the Army and have been for 17 years. My disease process and diagnosis has literally been all over the place! I'm no faker or malingerer, quite the opposite. I was used to running five...
  3. T

    Here again.. Read all the stickies

    I have been on this forum for around 2 years, have had symptoms of MND for three now. I have read all the stickies and I'm not the typical hypochondriac with a few twitches that googled my way here. What I have finally figured out after three years, 10 neurologists and probably more than 25...
  4. T

    Contraction fasciculations

    Does anyone have fasics that occur while the muscle is either partially or fully flexed? https://m.youtube.com/watch?v=FKiYIiX0HW8 This is what my calves do, my thighs do something similar where they ripple and twitch when contracting the muscle. And before everyone puts me on blast, yes I've...
  5. T

    Dreaded Monday

    I have had a lot of Mondays that I have dreaded, mostly due to some work deadline or mind numbing meeting I knew I would have to attend on a Monday. This coming Monday is different, I have been to 7, yes seven neurologists in 24 months, 5 of which told me nothing, one of which told me off the...
  6. T

    links to help you decipher an EMG

    http://www.zielinskifam.com/lit/neuro/als/emg-early-als.pdf http://depts.washington.edu/neurolog/images/emg-resources/Motor_Neuron_Disease.pdf the above links are very helpful in understanding the meaning of your EMG results. I didnt have a clue for months and there is unfortunately no easy or...
  7. T

    Anyone been to Mayo Clinic in MN?

    So I saw neurologist #7 (in two years) yesterday and she said I definitely have MND and probably ALS, but that she wanted to refer me to the Mayo clinic in MN to be sure. Has anyone had experience being referred there? any insight would be appreciated. it is an 8 hour drive which will totally...
  8. T

    Nearest ALS Clinic in Nebraska

    I just moved to Kearney (right smack in the middle of) Nebraska. I switched my insurance over from TRICARE north to TRICARE prime remote via TRICARE west and will go for the required PCM visit to get referred to a Neuro, to get referred to an ALS clinic hopefully. Can anyone recommend one in the...
  9. T

    can anyone interpret EMG results

    I cant make sense of most of this, I am NOT of any sort of medical background whatsoever, I would appreciate any translation or thoughts on what it means in laymans terms: Electromyography: Left tibialis anterior (L4,5,deep peroneal n.): Normal insertional activity, no spontaneous activity. 50%...
  10. T

    Does anyone have experience with Walter Reed?

    So I am in a bit of a predicament. I am an Army officer (Captain) with 16 years of service currently serving as a recruiting company commander in Ohio. I am closer to an Air Force Base than an Army base, so I see a Neuro at wright Patterson Air Force base in Dayton where the chief of neurology...
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