@Tractor Boy thanks for the tip! I already did this a few times:) I also know that massages do help me a little, although it is for a short period. I was wondering if you also feel worse in warm periods. I do like the summer weather but too hot makes me even weaker, the neurologist said that was...
@billbell52 Thanks for your advice. Actually my symptoms started even when I was around 15 years old. I have once seen a doctor specialized in ALS, she decided to take me intern the hospital where here colleagues didn't take me serious. Half a year ago I got rejected. That is what makes it...
Thank you. My age seems to be a problem. In my country there are specialists.. but they think it might go away because I am so young. The only thing is since 8 years it only got worse. I am curious if people here did manage to train and get more strength? I recently bought a hand trainer, I am...
Thanks for the help. They did check me on MS. MRI of my brain and spinal cord. I can imagine that this is à hard task for doctors. Of course I do not want to have PLS, but after all these years I just want to know it...
I am 23 years old... I understand this is maybe too young for PLS but when I read more patients their story they also sometimes tell that the symptoms started early..
Yes sorry for opening a new topic, my other one is closed. But I really hope someone has maybe some tips for training or what else it could be than PLS, because I am quite concerned...
Hey guys,
I follow this forum for about a year now and didn't know if I should post my story in this topic, but I am a little concerned. Good thing to know: I do not think I do have ALS, but clinical research shows high neuron problems, they thought it was suspicious. Clinical research is...
Sorry to read this topic.. I am not diagnosed yet ( do have hyperreflexia etc) and that pain is something that I have to deal with for about 6 years. I noticed that knowing of spasticity helps me a little bit to understand the pain. I always try not to sit too long ( the pain in my hamstrings is...
I really recognize myself in your story, that's why I decided to reply. I do not officially have PLS but my neuro exams shows upper motor neuron signs too. I recognize the 'stiff feet' story. Do you have these only in the morning or also in the rest of the day?
Take care,
Dutchie