@Tokahfang: No, he still has a manual wheelchair. I think he's about due for an upgrade, particularly since his hand and arm strength are waning. He's not terribly social to begin with, so I'm sure there really just isn't that much to do even if he did have PWC. Still, I'd like him to get a...
@Tokahfang: Thank you so much for the info. I have heard that symptoms can plateau for long periods, so my wife and I are both hoping my father lucks out on that front. I think everyone involved, including my father, are particularly concerned about the loss of speech and problems...
Thanks for the info! The occupational therapist seems like a must. His current residence isn't really equipped to handle his situation at the moment. I have a feeling that he's going to need a major overhaul in his living space if he wants to eliminate most of the hassle he experiences...
Ah, thanks for the directions. I went straight to the PLS forum, so I didn't even think to look at the ALS forum list.
Not yet. I live in Southern California while he lives in Northern California, so I haven't been able to make any local contact with clinics. I'll do a little looking around and...
Hi, all -- My father, 60, was diagnosed with PLS this past August. The disease has progressed to the point where he has no functionality in his legs and declining strength in his arms, hands, and trunk. As I'm sure most of you experienced, he was led along for years with incorrect diagnosis...