Search results for query: *

  • Users: mrvaughan
  • Content: Threads
  • Order by date
  1. M

    fixing the clogs

    When my pals tube gets clogged there have been a few successful methods before we have to call the doctor. 1) put coke/pepsi in the tube and let it eat away. 2) put vinegar 1/2 way up, then put in a little baking soda, close the valve right away, because it starts to bubble up and out.
  2. M

    Palliative Care

    Hello, Lately my PALS FTD and psychosis has gotten worse and it has been suggested to me by the ALS clinic to see a palliative care doctor. I have an appointment set up next week with him, but I was wondering if any of you had any experience with this. They wanted to see me without my PALS...
  3. M

    It just got crazier

    Hello everyone., I hope that you have had good holidays so far. This is a very blessed time of year, but also a hectic time. Now for my story. Hopefully someone might have advice that I can use, or maybe just putting this down in writing helps me to not feel so overwhelmed. I am the wife...
    • mrvaughan
    • Thread
    • advice back christmas diagnosed divorce family fell ftd hope hours mad money neurologist nurses story undiagnosed ventilator wrong
    • Replies: 16
    • Forum: Current caregivers
  4. M

    ftd and obsession or fixations on a person or sex

    I know that this is a very tough subject. I hope that it does not offend anyone, and I mean it to be more of a reaching out to see if there are others that seem to have the same issues. 5 1/2 years ago, after my husband went on a vent, we tried to keep our sex life going. He could not move...
    • mrvaughan
    • Thread
    • advocate als angry caregiver children drugs eating family food ftd health hope insurance life neurologist nurses pain research shower vent work
    • Replies: 21
    • Forum: ALS and frontotemporal dementia
Back
Top