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Hello all, My mom received her PEG yesterday. They are waiting on the home health nurse today to give them instructions on how to use it and take care of it. My question---what are the "side effects" of using a high fiber liquid nutrition (1.5 cal Jevity)? She had a bout with severe...

Hello all, My mother (diagnosed June 07) just went to the hospital for extreme pain in her side. She's had her appendix out, so that's not it. She's been suffering from constipation, but her husband assures me that they took measures to combat it and she has gone several times in the last two...

Hi all, I'm trying to gauge how bad off my mother really is. She and my step father are living their lives as though she'll live another "2-5 years". Not requesting special visits from my siblings who live far away. Not talking with us about her final wishes. They keep the ALS clinic...

Hello all, I've been away for some time. Reading, but not posting. My mom went to the ALS clinic yesterday for her 3 mo. checkup. Since her diagnosed in early June, she has lost 30lbs! I don't believe there has been any suggestion on the part of her docs for a PEG tube, but I may be wrong...

Just wondering. I was thinking that my mom's outlook might improve if she could meet others with ALS. She has no interest in attending group sessions at the ALS clinic in San Antonio. She heard they are depressing.

My mom (diagnosed, June '07) refuses to answer questions or emails about where her heart and mind are concerning this disease. She's very depressed (I would be too!), but has started antidepressants. I feel like she's just waiting to die because she feels guilty about burdening her husband...

My mom was diagnosed in early June. One year before that she married her high school sweetheart. He had been recently widowed. He took care of his ailing wife (cancer) for nearly 5 years before she passed away. For obvious reasons my mom feels hugely guilty that he's "burdened" with another...

Good morning all, My mom is in the beginning stages of ALS (official diagnosed in June). She said she watched a DVD last night given to her by the ALS clinic and was worried because she found out there would be pain. She thought that if the muscles no longer worked, that the nerves would no...

My mom is a PALS and officially diagnosed in June. Her speech is very slurry and is using a walker exclusively. Many of her small motor skills are impaired as well. My tiny victory was her allowing me to begin cleaning her house once a week and maybe put some dinners in the freezer. She's...

Let me preface this by saying I very much appreciate the discussion on the General Discussion part of the forum. I need some more graphic answers. My mother and her husband just got a definitive diagnosis from the ALS clinic in San Antonio, but we've (neurologist and our family) suspected it...