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My wife and I are both over 65 and take SS. We also care for her mother, 95 and Parkinsons, and lives with us. My wife has developed seizures in the last two months and is not well, pretty much confined to the house as these seizures render her unresponsive for as much as 3 hours. I am still...

3 weeks ago I had an extensive clinic year to year evaluation and they said, and I reported here, I was progressing very slowly. Since then things have gone to pot in a hurry. I know there will be ups and downs so it isn't that. I seem to have caught the flu or something with its related ache...

Day long 1st anniversary clinic/team visit yesterday and I'm progressing but they tell me only very slowly. I feel bad for announcing that and it is very selfish for me to do so - I'm sure you understand that I have zero intent to do the "wow..so lucky" thing and it can be offensive and would...

I've been able to keep my weight up since I was diagnosed. Very lucky. Dropped 10 pounds in 6 days. Crap.

Gave in and now on the pill. It is like admitting the worst. No issues so far. Egad.

Diplopia is double vision. This hasn't been widely reported to be ALS related other than in a few studies. The ALS component seems to have something to do with the lateral and medial rectus muscles (left and right/toward the nose and away). I bring this up to see if anyone has some thoughts...

I was diagnosed last fall and aside from some speech/swallowing problems, atrophy, fasiculations, useless left hand and right arm, EMG +, falling some, and having trouble walking faster than a snail (did I mention lifting my legs?) and now inability to take a deep breath, I've got a couple more...

I started symptons 5 months ago and am now in an ALS clinic at Columbia Presbyterian. Good place. Good docs. I've read a lot about the "end game" issues. I'm fully aware that then last few months are a pisser to say the least. I'm not in denial but my feeling is that the end stages for...

I was referred into the Lou Gehrig Institute at Columbia Presbyterian about 2 months ago. Based on their findings, my case has gone from my local neurologist to them for the duration. My EMG came back not in my favor although as I have Type II diabetic neuropathy, there seems to be a pile of...