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  1. N

    My dad passed away yesterday.

    It was controlled, he was comfortable and we were all there. I know I have only been here a short time, but I want to thank you all for your support. We are looking for ALS patients, in our area, that could benefit from some of his equipment.
  2. N

    A sad update on my dad

    I posted a few weeks ago. My dad has been in the ICU since 12/26. His perm-cath was infected and he had pneumonia. Sadly, they also found that he has a volvulus, which is a kink in his colon, often caused by constipation/immobility, so a secondary issue to his disease. The fix for the kink is...
    • NolaJen
    • Thread
    • back cals candida constipation dad diagnosis grief hospice palliative care pneumonia respiratory sad scared support surgery trilogy update
    • Replies: 11
    • Forum: General discussion about ALS/MND
  3. N

    Caregiver checking in

    I posted a long time ago about my dad. He does not have MND, they still think he has CIDP (although an outlier variant of it). There are some differences in his disease and ALS, but ultimately they look very similar. He is unable to move any part of his body, he is on a trilogy home vent 24/7...
  4. N

    I am at a loss

    Hi, I hope this is an appropriate place to post this. Four years ago my dad started having drop foot and other symptoms in his body, including twitching. For a year they doctors thought it was a pinched nerve and other things. By the next year he was experiencing weakness and difficulty walking...
    • NolaJen
    • Thread
    • breathing breathing issues coughing dad decline diagnosis foot handicapped van hope ivig mnd pulmonary function test scooter symptoms test twitching van weakness
    • Replies: 13
    • Forum: General discussion about ALS/MND
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