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Appears my comments are now moderated.. Nice guys.

Unknowingly, I married into an SOD1 family. Would I had I known? Very good question. Not sure. Would I have had kids the old fashioned way? Probably not. Who knows though. Is it safe to assume that my husband has the SOD1 marker now, yes. We had suspected the disease for about 2 years now...

Seems like this forum just feeds the irrational fear of way too many people. Seriously. Reading through these threads and it's amazing! Just wow!

My kids are 8 and 9 years old. Thinking about the care involved as the disease progresses. How do you handle this? My husband has the disease and he is not sure how much he will want the kids to see. Thoughts?

What do you know about visiting a kinesiologist vs a physiotherapist? We have the option of either.. Thoughts?

Today my heart is heavy and I am going through the motions. It's like I'm an actor in a movie. We recently received my husband's diagnosis from the ALS centre. We are both putting on a brave front for the kids. We are both putting on brave fronts for each other. I am taking the kids out to...

Husband was just diagnosed although we had suspected it for about a year. His side of the family carries the SOD1 gene and diagnosis was very easy for him. Doctor did an EMG and that was it. His Mom just passed away from it and we have lost a cousin and an Aunt to ALS. I'm not thinking about...