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    Stem Cell Treatment

    > Our most brilliant scientists have their hands tied by our government.< I think that statement is totally not correct. I have a family relative(cousin) who is working in stem cell research and she told me that the biggest problem is no one knows how to get them into the human body in a way...
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    Stem Cell Treatment

    I agree totally with you Max, sorry I did not get together with you in DC, I thought I had your cell number in my phone but, I must have not gotten it in. Rick
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    Things get worsed

    I would be calling my neurologist asap. You need to get to the bottom of this as fast as possible. It is really taxing on one to think that they have a serious problem. Rick
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    Bulbar Onset ALS Diagnosis

    I would suggest about any disease the could end you life a second opinion would be a good idea. It may simply entail looking at your previous test results. Rick
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    Tirasemtiv

    I just got an email that said tirasemtiv had been approved and may help with respiratory distress. Rick
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    physician asks: is this ALS/MND?

    <Wouldn't a physician consult with other physicians for his answers instead of going through us? This is extremely weird. I would agree with Max Rick
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    SAH Grant

    That is excellent news. I would agree with Celticgirl you will see a great difference. We did. :)
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    toxic tears...

    Your eyes water when they get too dry. My OD suggested eye drops and my wife use some kind of ointment at night I would check with an OD. Rick
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    Adaptations or difficulties

    Hi Kristy, I use AFO(ankle foot orthotics)(sp?) and a walker. Voice banking is very important to me too. The bidet toilet seat is a very useful tool, we have a Brondell S1000. I also use a shower stool which is a big help. We also had a roll in shower installed and wide hallways also 36 inch...
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    What do you want others to know?

    I would think that it would be important to let people know that we are living with ALS not dying from it. I think all the above comments are on the mrk too. Rick
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