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I'm sorry, what does venting entail and what is quality of life after you vent. I'm brand new and not familiar with terms. Thank you for responding :-)

We've elected not to tell our son until we absolutely have to. He's 6 and I want him to be 6. I am headed out to the Mayo Clinic in late November for my second opinion. I'm so nervous!

Thank you for your kind words as I'm trying my best to cope with my diagnosis.

I'm newly diagnosed too. It's nice to talk to people who know exactly what you are thinking and feeling, it's indescribable.