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    ALS and iPads for communication?

    Ok, Im pretty Apple fluent but I dont understand all the references to switches. Can someone take a stab at explaining to me what those are?
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    Battle lost

    Cree: I am so terribly sorry. My heart hurts for you. You were given a gift to be able to be with your loved one to the end. I would give anything to be able to do the same. This disease steals everything from us all; our loved ones that are dying from it and the ones that love them....the...
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    Being shut out

    Thank you all for your responses. Saying this has been incredibly hard isnt news to any of you. I cannot believe how many tears I have shed and how many more there will be to come. I am just going to try my best to put on a strong face and not be down when we are together. I just want to be...
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    Being shut out

    Rob: thank you for that. Your insight is invaluable since you are in his shoes. I dont know how he can want to be alone when awhile back all he said he wished for was me by his side and for my face to be the last thing he saw before he left this earth. I dont care that he is no longer the...
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    Being shut out

    My heart is breaking...my love is shutting me out of his life. He wants this to all be over and doesnt want me to watch him die. He is such a proud and stubborn man. He was so full of life and love for me and now nothing. This disease isnt just only taking his life it is taking mine. I dont...
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    Thank you. Yes, it has been a whirlwind of emotions that I cannot even begin to process. Thank...

    Thank you. Yes, it has been a whirlwind of emotions that I cannot even begin to process. Thank you.
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    I came to your page because my heart is breaking and I think you will know my pain. I met the...

    I came to your page because my heart is breaking and I think you will know my pain. I met the love of my life and soul mate about 3 months ago. He is a year into bulbar ALS. He is failing so very fast. And for a host of other reasons, I am 500 miles away from him and can only be there for...
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    Thick it and VHC Boost shakes covered by Medicare?

    My friend is failing pretty fast from his bulbar ALS. He is having difficulty swallowing and I have been buying him the VHC Boost shakes, Thick It and the Nestle thickened juice. My question....does anyone know if these are covered by Medicare? I ask because I saw a sticker on one of the...
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    My latest news

    Hello all. I am new to all of this...what is a "pacer"?
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    Cooking for my friend with ALS

    thank you everyone for your replies. I guess although blended pizza sounds entirely disgusting to me it might not be to someone who really is craving it. I like the idea of the cauliflower and for sure I can add in butters, fats and gravies. Heck, my grandma was from Arkansas and she taught...
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