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My beloved husband Andres passed away peacefully a week ago. It was all so very joyous and beautiful, he hardly suffered at all. From the day before he entered a magical space of feeling very good and laughing and telling all of us how much he loved us. We all had so much opportunities to...

Hi all... I've been away for a while. Things have gotten more complicated here. My husband Andres has had a very fast energy loss in the past month along with taking the decision of letting go of eating through his mouth. He has a feeding tube but he would have a little juice or chocolate milk...

I am beginning this thread because I feel that caregivers need a place to talk freely and unapologetically about the complicated dance of relationship issues with our PALS. I am inviting you to give voice to the unspeakable... PALS, come in at your own risk. :twisted:

Hi, Andres had an idea, he wants to know if people can share what books and authors (spiritual, motivational or otherwise) have helped you during your process with ALS so we can share the wisdom we each find... The single book that has helped us the most is The Power of Now, by Eckhart...

Hi, We are in the process of getting a lift as I can no longer carry my husband, I have been doing it far beyond where I should've stopped and have huge back and neck problems, I am in constant pain, so I really need a solution. I need something that will help both with transfers and with...

This is my first post though I have been reading some and have found this forum to be a blessing. I am the caregiver for my husband Andres, we are both 35 and have been living with ALS for 5 + years now since it started about a week after we got married. Andres is now totally paralized from...