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  1. Citlalli

    A movie for you and your PAL

    Andres and I really enjoyed the movie "The Fountain" (2006). Its really interesting, deep and beautifully made. Plot outline: Spanning over one thousand years, and three parallel stories, The Fountain is a story of love, death, spirituality, and the fragility of our existence in this world...
  2. Citlalli

    Caregivers only... You and your PALS

    Dear Gina and SWMN about spreading ashes in a place you love, I have to share that we spread the rest of Andres' ashes this weekend in our garden and the rest in our special secret place in the mountain, the first part, in the ocean a couple weeks ago. it was such a gift for alll of us to go to...
  3. Citlalli

    question about communication

    Hi, the advantage of the laser-board system over the computers is that even with word prediction it is a lot faster because one thing computers will never know how to do is read the context of a conversation. Andres never used the computer in conversations because once you type it the subject...
  4. Citlalli

    Lost husband of one year to ALS

    I am sorry and feel so much for all our losses. I relate so much to all of your words: The relief of knowing his suffering has stopped, that he is free from his body that restrained him, hurt and caused him so much discomfort. For me, that I can sleep the entire night, write this post, drink...
  5. Citlalli

    question about communication

    I had just written about this privately to someone when I saw this post so here it goes... There are many ways to communicate verbally. My husband invented a great system using a cap with a laser that points with a specially designed alphabet board. It was amazing, we even got him a special...
  6. Citlalli

    finances

    Hi, Living in Mexico and having no social security or insurance of any kind, for the last 2 years (of 6) we had to rely on our families to help financially, I worked all the time that I could until it was no longer possible (in something part time, close to home and totally unrelated to my...
  7. Citlalli

    What actuallly kills an ALS patient?

    Hi all, I also used to worry so much about how my husband Andres would die, would he choke? Suffocate? Suffer? I would like to share briefly how it really happened. A couple weeks before he told me (with a apecial system we had) "I feel I am going to die soon" He was getting weaker and weaker...
  8. Citlalli

    Andres is Free

    Dear ones, Thank you all for your messages. I am slowly regaining my energy now but I fell very ill ( with a cold that went to my lungs) when the whirlwind of energy that came with Andres' passsing subsided. When the people and the adrenaline were gone and I had time alone it was as if all the...
  9. Citlalli

    Andres is Free

    My beloved husband Andres passed away peacefully a week ago. It was all so very joyous and beautiful, he hardly suffered at all. From the day before he entered a magical space of feeling very good and laughing and telling all of us how much he loved us. We all had so much opportunities to...
  10. Citlalli

    Near the end

    Thank you I want to thank you for all your messages. We are in a very intense space now. We had a little party where all of Andres childhood friends came to say goodbye. The next day ( sunday) he did not get up from bed. It seems he wont anymore, he has no energy. The reason he does not have...
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