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  1. dalvin

    Very concerned

    Did you even read the stickies for this subforum? The nature of your question indicates you didn't. They were written for a purpose, to answer that type question so you guys wouldn't bother us with things that have nothing to do with ALS
  2. dalvin

    Stowing the PEG tube

    Another option is to use a large safety pin and secure it to the inside of his shirt
  3. dalvin

    Start of Foot Drop? Very scared/concerned..

    Re: Scared Once Again - Constantly Worrying Get lost....
  4. dalvin

    strange symptoms, scared to death.

    Try reading the stickies for this subforum like you were instructed to do when you went to post your question. Your whole post indicates that you skipped past them. Your answer is there. They were written by people with little ability to write or who have little time. Asking without following...
  5. dalvin

    PEG Tube Change Today

    Mines being changed next Tuesday.
  6. dalvin

    Starting the journey...

    Welcome ....
  7. dalvin

    Increasing bipap usage

    If he has a trilogy it should have come with battery backup in the case it's housed in allowing for up to 6 hours use before needing to recharge.
  8. dalvin

    pain n chair

    I only paid $300 out of pocket. Insurance covered the rest, little over a year ago
  9. dalvin

    Steve's Introduction

    Welcome....
  10. dalvin

    In disbelief

    I wouldn't describe my tongue as heavy, it simply doesn't work right. Won't move food around causing chocking as i can't get it moved back to swallow properly. Been using a peg tube almost a year now . Words are hard to form
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