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  1. cheryilyn

    FVC question

    My fvc has went from 36 before diagnosed to 58 shortly after diagnosed (started bipap and stopped smoking) Now it is very low about 18 3 months ago. I am still only using bipap at night and breathing seems fine. M y question is about the test, I have felt all along that the test is not valid...
  2. cheryilyn

    weak neck muscles

    Hi everybody, My neck muscles are getting weaker everyday. I have an appt. on the 31st to fit for a head support. Was wondering if anyone has any ideas on what i can do until then as my head is getting very heavy.
  3. cheryilyn

    vents

    I am probably going to have to vent soon and would like to know what we are in for. No question in my mind or my families that I will vent and want to stay home, any advice would be appreciated, Cheryl
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