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Al, how much baclofen do you take?

Andy, i have not been on here for awhile. ijust read your post. i have bulbar onset als, i first noticed a droop in the left side of my face in aug. 05, some trouble swallowing sept. 05 by dec. when i first saw a neuro i was having difficulty talking she ordered a mri and said if it was normal...

Del, i am so glad things are looking up. i am still praying for you.

she will not stop eating until she decides to. i know this because i have been most stubborn in this area. make sure her food is pureed and that someone is with her.

I asked my dr. about lithium awhile ago and she said no proof and too many side effects.

Thanks Mike. I needed that.

Good for you.

My fvc has went from 36 before diagnosed to 58 shortly after diagnosed (started bipap and stopped smoking) Now it is very low about 18 3 months ago. I am still only using bipap at night and breathing seems fine. M y question is about the test, I have felt all along that the test is not valid...

I started with bulbar, legs and now am losing hand and arm. It started with my left pinky curling and then my index finger, my left ring finger does nothing, no curling no movement.

I will add my prayers also.