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  1. M

    dad has passed

    Re: Terminal Wean from Ventilator Well my dad passed peacefully at a local hospice house on Monday April 16, 2015 at proximately 11:30 AM after ventilator withdrawl. He was given an IV of Fentanyl and Verced (these drugs are supposed to be faster acting than morphine and ativan). Once he was...
  2. M

    Terminal Wean from Ventilator

    It has been a while since I have posted so I wanted to relay a chain of events that may help others in a similar situation or heading toward a similar situation. My father was diagnosed with ALS in September 2013 at 71 years old. His symptom onset was a year prior with overall weakness...
  3. M

    Blom tracheostomy with Trilogy 100 ventilator

    I wanted to blog about my dad and his recent surgery to get a trach and begin full time invasive ventilation. Prior to surgery he was on BiPAP 22+ hours a day with good use of his arms and hands, able to walk short distances with a cane or walker. Breathing was his biggest problem and he went...
  4. M

    ALS with Paraneoplastic LEMS?

    My father was recently diagnosed with ALS at 71. His symptoms started one year ago with left drop foot followed by overall declining strength and weight loss (70lbs over the past 12 months). Originally we thought it was a pinched nerves in his spine, then a Statin myopathy. He was hospitalized 6...
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