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Let me explain something to you. Als or any other mnd disease is difficult to diagnose. Sometimes it takes a few years before you get the diagnosis. You experience complaints all the time. You therefore feel anxious and alone. Certainly in the case of swallowing complaints and respiratory...

I’m sorry for bothering you. It’s a long wait untill July the 15th, my new appointment. And yes, I do try to eat things I do not have problems with, but the breathing problems and the swallowing problems scare me. They are trying to get me to another hospital with a shorter waitinglist, but I’m...

My history: 2013 fasciculations 2014 Neuro and EMG, diagnosed BFS 2015 light swallowing problems, did nothing with that and went on with my life 2018 swallowing problems got worse. I eat very slow, about 1 hour if it is pasta, potato or bread. It feels like the swallowing reflex doesn't come. I...

Thanks Laurie, I will keep that in mind when I see him on the 20th of May.

Hi Vincent, thanks for your reply. I did not have swallowing issues before the EMG. It started with twitching bodywide, then a normal EMG. Had no symptoms at that point and after the neuro diagnosed me with BFS I got on with my life. However, the swallowing issues started 1 or 2 years after...

Thanks for that. I do not have any questions at this point, I was posting an update, because I had received some private messages and noticed that people want to know how it's going. I have an appointment with the neuro on the 20th of May I heard today, so won't be too long...

I wanted to post this in my thread from november, but it’s closed so here’s a new one. The ENT did a swallowing test and couldn’t diagnose me. He send me back to the neuro. There is a long waitinglist, I’m waiting fot an appointment. In the meantime, things get worse. I choke almost ervery time...

Honestly, not very good. Swallowing problems increase. The Ent couldn’t help me and send me back to the neuro. Waiting now for the appointment..

Thanks for your reply. Yes it did change, it got worse, very slowly. I have had some light problems with swallowing since 2013/2014, but I got worse over the time. Now, I can not swallow meat, potatoes a little bit en bread is also a problem. I'm very worried about that, what if it gets worse...

In 2012 fasciculations started. I also have pin and needles and some other little things. Went to the neurologist, he did some tests and diagnosed me with BFS. Slowly my worries disappeared and I went on with my live. I'm 42 years old now and a mum of 4 kids. But... since 2014 I got some...