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  1. L

    Does ability to blink even stop?

    Hello - my dad was diagnosed with ALS almost 3 years ago. It began in his hands and now he is unable to move except turning his head and twitching fingers. His voice is fairly strong but starting to become affected. I've been reading that eventually, if he loses the ability to speak, most...
  2. L

    Is there any way to know the progression? :(

    My dad was diagnosed with als about one year ago, he is 67. His first symptoms were hand weakness and trouble with fine motor things like buttoning. His doctor at the als clinic said he was diagnosed on the early side, which I guess is a good thing? The biggest question my dad has had since...
  3. L

    I want my father to be at my wedding. :(

    My father was diagnosed with AlS in early 2013, limb-onset. Started with weakness in his arms. Fast forward a year, and he has lost about 80% of the use of his arms. His voice and swallowing are still very strong, and legs are strong. He says he has been having fasiculations in his legs for...
  4. L

    ALS and iPads for communication?

    My father was diagnosed about 9 months ago, limb onset. He has extremely limited use of his arms now and within a few months will have no use, the doctor is predicting. My brothers and I are thinking about getting him an iPad mini for Christmas, as it's something he's wanted for awhile. I...
  5. L

    Question for PALs in wheelchairs (and caregivers!)

    I would love any stories and advice about this, as it's a big unknown for me. For PALs who are in wheelchairs, how often do you typically need to transfer/reposition yourself during the day? My mom is going to be my dad's primary caregiver- she's in good health but not big and super strong...
  6. L

    is it really possible to have a loved one stay at home?

    Hi everyone. I have been lurking here for the last few months and have gotten so much information from reading everyone's posts. My father was diagnoses with limb-onset ALS in March. He has fasiculations in his legs but is still able to walk completely independently. He has limited use of of...
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