Search results for query: *

  • Users: Lory
  • Order by date
  1. L

    Does ability to blink even stop?

    Thanks so much for the reply. Does the eye gaze that your sister uses require blinking to work?
  2. L

    Does ability to blink even stop?

    Hello - my dad was diagnosed with ALS almost 3 years ago. It began in his hands and now he is unable to move except turning his head and twitching fingers. His voice is fairly strong but starting to become affected. I've been reading that eventually, if he loses the ability to speak, most...
  3. L

    public awareness

    I just watched the video link. It was really great; you are so brave :)
  4. L

    I want my father to be at my wedding. :(

    Thank you so much!
  5. L

    I want my father to be at my wedding. :(

    I actually just posted in another section about progression- that's really comforting to know about the breathing. Thank you. :)
  6. L

    Is there any way to know the progression? :(

    My dad was diagnosed with als about one year ago, he is 67. His first symptoms were hand weakness and trouble with fine motor things like buttoning. His doctor at the als clinic said he was diagnosed on the early side, which I guess is a good thing? The biggest question my dad has had since...
  7. L

    I want my father to be at my wedding. :(

    Thanks so much for the replies. I know my dad wants to be at the wedding, but I don't think he cares too much one or or another about walking me down the aisle. I would be fine with him in a wheelchair as long as he is comfortable. I wish there was more information about charting the...
  8. L

    I want my father to be at my wedding. :(

    My father was diagnosed with AlS in early 2013, limb-onset. Started with weakness in his arms. Fast forward a year, and he has lost about 80% of the use of his arms. His voice and swallowing are still very strong, and legs are strong. He says he has been having fasiculations in his legs for...
  9. L

    ALS and iPads for communication?

    My father was diagnosed about 9 months ago, limb onset. He has extremely limited use of his arms now and within a few months will have no use, the doctor is predicting. My brothers and I are thinking about getting him an iPad mini for Christmas, as it's something he's wanted for awhile. I...
  10. L

    Question for PALs in wheelchairs (and caregivers!)

    I would love any stories and advice about this, as it's a big unknown for me. For PALs who are in wheelchairs, how often do you typically need to transfer/reposition yourself during the day? My mom is going to be my dad's primary caregiver- she's in good health but not big and super strong...
Back
Top