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  1. C

    Hospice or No Hospice

    WY--I was told by a Hospice representative to document my condition in order to continue to qualify for Hospice/Medicare. I am resurrecting some of this from computer notes made for an upcoming doctor visit.Some is coming from copies of excerpts of letters written to others--ability to do what...
  2. C

    for you fellow "bulbars" out there with voice issues..

    Letty and Pdaddy---Way before ALS, I was using an oral irrigator because of the spacing of some teeth. Using this ,you can squirt water between the teeth and along the gums. I takes some patience getting used to it, but I would not like to be without it now and use it several times a day. Ruth
  3. C

    Does the Medical Community Not Know About ALS?

    I am 80 years old, diagnoses May 2007, ALS symptoms galloping ahead. Still walking with walker, speech difficult to understand even for my family, typing difficult--especially right-and fingers, excess saliva, some choking. It took several weeks (months?) for me to be accepted by Hospice...
  4. C

    Feel totally helpless

    If you and your brother believe your father is being abused by this woman, if I were you, I would seek professional advice. Look for an elder-abuse agency, or a trusted doctor with whom you can ask for a consultation. I would try these first. It must be devastating for you dealing with all...
  5. C

    Keee ping PAL at home

    keeping PAL at home I am moving from my home to my daughter and son-in-law's tomorrow. They can be with me more and will have to drive back and forth less. Hospice has been and will be a great help for me. The nurse visits once a week (or every two weeks) and phones every few days. A...
  6. C

    AL and ALS Article and slide show

    blocked from atrophy pictures I would like to see your hand slide show, Al, but I am told "you do not have access" to this page, then says the reason could be if I am trying to edit someone else's post, and list s some other possibilities. Honest, I just wanted to see the pictures. Maybe...
  7. C

    Treating excessive saliva

    mucous relief Just beginning so this may not work if mucous increases unduly. It is rather like using the gauze. I literally pull the mucous out of my mouth with my fingers, leaning over the bathroom sink, rinse my fingers, and repeat until the mucous becomes thin or as long as I endure.
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