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I'm in Nicholasville too. I have had facis since June. Scared to death. Going to UK later this month for another opinion as my EMG was "not perfect, but not diagnostic either". I don't have any weakness. Fasiculations can be caused by stress, anxiety, lots of things so hopefully that will...

Just watched my mother go through this. First of all, don't rule out the feeding tube (PEG). It is a horrible site to see someone wanting to eat but unable to get the food down, unable to even keep the food in their mouth. She so wanted food and water as the end drew near, but had chosen not...

My mother was 78 when first symptom appeared, 79 when diagnosed. She passed away 10 months after diagnosis at age 80. She was far advanced when diagnosed-couldn't get her to go to the doctor.

Hi, Didn't think I would ever be here on my own. My mother died of ALS early May and I was on for her. Now I'm on for me. I started having fasiculations in my calves in late June. After they didn't stop I saw my family physician and after running blood work which was normal, he referred me...

Atsugi & Nikki, Thank you for your replies. Mom was almost fully involved before she ever went to the neuro, and we don't know for how long she had fasiculations prior but after the neuro pointed them out to us, we watched limb by limb go out. I will try to not worry so much. Hopefully the...

Hi every one. As you may remember, my mother passed away from ALS in May. She is the only one in our family that I am aware of that has had ALS. But that doesn't keep me from worrying. For about a week and a half now, I have been experiencing muscle twitches. Started in my calfs one morning...

Paulette, Thank you so very much for the prayer. I am so afraid that I won't find what is to be the "good" in all this. I pray for that every day. I don't want to be the same person I was before all this happened. You know, some days I don't ever want to hear those three letters again; but...

Just stopping in to share with those who understand. Having a sad day today. Sometimes I cry missing mom and how she was before the ALS struck her. Sometimes, like today, I cry because of how awful the disease was and what it did to her. It's been seven weeks now, I don't know how I'm...

Everyone deals with grief differently. We found a beautiful picture of my mom in the days after she passed that dad & I both love. We got a frame, put it out, and he talks to it daily. He also put out a picture of the three of us from years ago. I found a chair pulled out last week in front...

Tillie, "....But this incredible sadness fills much of me inside, and without warning it grabs me or a situation." Love you above line. Never know right now whenthe sadness will get me and tears will flow. Happened this morning walking Casey, continued on the way to work. I think it's going...