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  • Users: Lorie
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  1. Lorie

    My Sweet Brother Tim

    As I sit and write this, My heart is breaking..... I haven't been here in a while. Some of you may know that Tim passed away on Feb. 5th. After is long battle with ALS. He died in my arms just the way he wanted to. He was very Comfortable and Peaceful. Due to personal and family issues, I was...
  2. Lorie

    MDA Telethon

    I will be on the MDA Telethon Tomorrow for Tim and ALS! At 11:50am in Alabama. WJTC-44 (UTV44) Sister station of NBC-15 in Mobile. Lorie
  3. Lorie

    ALSTDI-ALS Research 101 Online Seminar Aug, 27th

    ALS Research 101 Online Seminar August 27th, 2009 6:30PM (EST) - 8:30PM (EST)....... 5:30 CST http://www.als.net/forum/Default.aspx?g=posts&m=317354 This seminar is designed for all ALS patients, caregivers and family members and has topics which speak directly to each. In advance of the...
  4. Lorie

    Pleotherapy technology

    A PALS Friend sent this to me. Interesting but I need to get more detailed information. Ipsen and Pharnext to collaborate on Pleotherapy technology 15 June, 2009 Ipsen, a French pharmaceutical group and Pharnext, a biopharmaceutical company specialising in the development of innovative...
  5. Lorie

    Blessed

    We have a Volunteer through Hospice named Maragret. She is a Blessing to us. She comes on Saturday's and visits with Tim for two to three hours. She came by during the week last week just to check on him. She calls me often just to talk with me. She is so concerned about Tim and our Family! Lorie
  6. Lorie

    You have to READ! Finding Raises Hope for Treating ALS-I knew it!

    I am sorry if I seemed overwhelmed and excited with the finding of this article. I knew it! I knew it! I have racked my brain and tried to beat into others to get my point. I am not of course a Neuro expert by no means. I have always believed this. Here it is! :arrow: MONDAY, JUNE 15...
  7. Lorie

    2009 is not on the Events Calendar

    2009 is not on the Events Calendar! Lorie
  8. Lorie

    The World's most Advanced Research Laboratory dedicate to ALS

    Virtual Tour: http://www.als.net/research/vlt/view.aspx Lorie
  9. Lorie

    ALSTDI BBQ 4 ALS July 4th

    I signed up to BBQ 4 ALS July 4th. This is the same organization that is doing the CVS Fundraiser. 100% goes to RESEARCH...
  10. Lorie

    CVS ALS ALSTDI Fundraiser

    The manager of my CVS called me the other day (he is a friend of one of my brothers). I will be invovled in the month long Fundaising project again this year. I will update on when it starts. I am working on some new ideas for this year. All proceeds go to research. CVS will match what is raises...
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